Showing posts with label insanity. Show all posts
Showing posts with label insanity. Show all posts

Friday, August 31, 2018

Petition to Cancel the Netflix Series "Afflicted"

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It seems Netflix has produced a series called Afflicted that implies MCS people are crazy. The participants are calling for the cancellation of the series. Here is there statement:

We were all told that we would be participating in a project that would show our lives and our struggles with illness through a 'compassionate lens.' We participated because our diagnoses are misunderstood and stigmatized. We thought that revealing some of the most intimate moments of our lives would lead to greater public understanding. We hoped that with it might come investment in research to find biomarkers and better treatments. We never fathomed that we were participating in a project that would instead expose us and our communities to further ridicule and disbelief. The most serious and central flaw of Afflicted is the way it frames our conditions - which impact millions of people around the world - as psychosomatic or psychiatric disorders. It does this in part by carefully excluding facts, which show that yes, while there is a lot that science does not understand about our condition, they have an 'organic' basis.

Hmmm...this reminds me of the Snowflake media fiasco a while back. There is no trusting the media, people! Unless you are absolutely sure of their agenda, back away cautiously.

Even though I signed the petition, I'd kind of like to see the series now. I'm living proof there is no such thing as bad publicity!

To sign the petition on Change.org click HERE

Friday, February 10, 2012

WHY ME?

Or more importantly, why not you? Why are some people more sensitive to everyday chemicals and others not? There are many theories: some valid...some not so valid.

Most American Medical Association doctors will tell you it's a psychological condition. Yes, you're just crazy and you are causing this yourself.  They don't even need to tell you - you can see it in their eyes and their attitude. You WILL feel insane if you see too many of these "professionals" who are locked within the confines of their narrow minds and corporate boys' club mentality. Reading I might be insane, I spent too many days sitting in perfumed rooms or around smelly people trying to "heal" myself and re-train my brain into thinking there was no problem. I rationalized if it's all mental then I have control. My job was at risk along with my health and I was willing to accept any theory as long as it would help me. I would have done anything to fix it. I practiced visualization and mind control techniques while breathing in the poisons. Yes, I was fine, I told myself, until my lungs would stop working and I would run gasping to the nearest exit. Needless to say, mind over matter didn't work. It's not a mental condition.

I have heard some people have been told God is punishing them. This is so ignorant I can't even comment on it.

My favorite reason for being chemically sensitive...my mother's cousin told me it was because I was not married. She was a 75 year old retired nurse so this was a variation on the American Medical Association's insanity theory. She was also not married so I'm not exactly sure of her reasoning, but she had been married so I guess she must have thought she was better than me.

Most of your friends and relatives will tell you, for lack of a better idea and no understanding, they think it's your immune system not doing its job. This would make sense as our immune systems should guard us against illness, but this is not necessarily the case.  In fact, my immune system is hypersensitive and overactive. I was asked by an environmental specialist who was assessing my condition, "Are you sick all the time, or not at all?" Not at all. In fact I remember the day my whole system went into high alert. I could smell every tiny bit of lotion, shampoo, soap, and fragrance on each person who came within five feet of me. Whoa! It was surreal and shocking. My reaction time went from fifteen minutes or so to one breath of toxic air.  My immune system is working overtime trying to warn and protect me which is what our bodies are designed to do. Although inconvenient and at times frightening, I don't see it as a faulty immune system. I believe this is why people who have other health issues become chemically sensitive. Our bodies become defensive as they try to protect and heal themselves.  I haven't had a cold, flu or sore throat for eleven years. One of few benefits of being chemically sensitive.

In addition, research indicates some chemically sensitive might have damaged or missing enzymes that would normally allow us to detox the chemicals out of our bodies. Instead of flushing out naturally, they are stored until we are overloaded. The overloading creates the poisoning. Reducing this load is the primary goal of most MCS patients.

Research programs for MCS are hindered, especially university research, because most of it is financed by chemical companies, and well, chemical companies won't be funding any studies that might affect their bottom line. Until there is more research, we won't clearly understand why some people are extremely sensitive to everyday chemicals and others not.

What reasons have you been given?